|
|
Joined:
November 2004
Posts: 1374
| Thanks Jason, and thanks to everyone else here. Shannon's home, took the poster from the pool hall advertising the tourney.. said she won so it's hers..plus she had her picture in the paper last week with the announcement of her win..
I told her that things are pretty serious, and that her mom won't be at the commencement, but we'll know more in a few days.. oh yeah.. forgot to tell you.. she was 3/10 of a point from graduating with honors... great kid, she's had a rough couple of years lately.
and her mom doesn't want her to know how bad it currently is so we'll leave it at that.. the doc today was pretty blunt about her chances and prognosis... and am hoping the specialists coming in for consult have a more positive answer or treatment.
I'm gonna go lie down now..
Glenn |
|
| |
|
Joined:
July 2005
Posts: 3411
Location: GA USA | Praying right now. |
|
| |
|
Joined:
November 2006
Posts: 2241
Location: Simpsonville, SC | Get some rest Glenn, you will need it for later on. Our prayers are with you both! |
|
| |
|
Joined:
November 2005
Posts: 4833
Location: Campbell River, British Columbia | Sitting hopelessy in hundreds of spots around the globe, all we can do is hope the comraderie and support of this group helps keep your spirit strong.
Much love to you both. All our life is just training for these moments. |
|
| |
|
Joined:
April 2006
Posts: 1017
Location: Budd Lake, NJ | Praying for you all, too.
--Karen |
|
| |
|
Joined:
November 2004
Posts: 1374
| Thanks guys and ladies, and a few gentlemen... and all those here and in our families and other forums for the prayers..
here's an update... she's feeling emotionally better, currently only has about 40% of normal heart strength or output..
bypass is not an option according to the Drs. too much damage... too much plaque... and if done.. improvement would me minimal or nil... and right now she wouldn't survive the surgery anyway.
ICD implant MAY be an option down the road.. but right now... too much damage, and she currently doesn't have the strength to survive the procedure.
Currently treating the clot and heart with lot's of very expensive drugs... of which just one alone is going to cost us over 3k per month after release... we are getting all of the prescription help forms from all of the pharma companies filled out for possible assistance on these.(hopefully)
The Dr. says she can go on another regimen of drugs which are lower cost, and some generics,and while it will maintain her in her current condition, does not feel those will gain her any recovery or improvement.
sudden heart attack or vtach may happen at any time... in her weakened state.
we are filling out disability papers for her. she has at least a few more days in the hospital being monitored before her release...
the docs as to prognosis say she probably has less than a few..(5) years left with us even with the best of the available treatments above.. and sudden distress and death could also occur at any time... for any reason.. too much extensive damage to the heart muscle..
this will pretty much destroy us financially unless we can get some help on the meds and treatments from the drug companies and hospitals, but I'm not worried about that now.. nor is she..will do our best to fry those fish as they come along..
we are focusing on the recovery, and our time together now.. they say they MIGHT let her go to the daughter's grad ceremony tomorrow night.. but if not, I'll be shooting video for her.
I'm still with her and she's still with me, and she is always the best part of every day for me..
The kids are all grown, I'll sell all we have to keep her here with me a little longer, as long as she needs me..
just happy she's still here today, we're just concerned with and enjoying today... and following all instructions and exploring all suggestions..
Thank you for your continued prayers.
Glenn |
|
| |
|
Joined:
March 2007
Posts: 665
Location: Tychy, Poland | I'm not a religious person and i don't know Char, but i wish her well, i hope she will recover. And i hope you'll do well also.
Best wishes |
|
| |
|
Joined:
May 2006
Posts: 4236
Location: Steeler Nation, Hudson Valley Contingent | I've been praying Glenn. I'll keep praying. From your many thoughtful words throughout this trial, the genuine, honest love you hold for Char shines...Shines so brightly that it touches lives and souls across the world. So many have responded to your humble requests with such compassion as can only come from hearts deeply moved by your commitment. And if we can all feel your love so completely when we are so utterly, physically removed from its presence, what must Char experience when she sees you enter the room, when you take her hand in yours, when you hold her close? Whatever else may happen, Char is, and will continue to be, well-loved! And she will return that love in kind, as she always has. God is eternal and is love incarnate! Hence, the bond you and Char share exists within the love of God Himself. And in the end, there are but three things that last; faith, hope, and love. And the greatest of these...is love.
May God's peace dwell with you and Char. |
|
| |
|
Joined:
December 2004
Posts: 4394
Location: East Tennessee | Patch,
Well said.
Glenn we will keep you and Char on our prayer list. |
|
| |
|
Joined:
October 2006
Posts: 5575
Location: big island | Amen. |
|
| |
|
Joined:
November 2004
Posts: 1374
| Thanks,
Char has been released, her current cardiac output is about 25% actually.. as confirmed by her GP today... felt kinda like it was a kiss a hug and good luck as they hustled her out the door since she's uninsured and uninsurable, but we'll see.
lots of new medications and we are to follow up with the cardiac surgeon who does want to follow up with the ICD procedure.. and says to worry about how to pay for it later.. actually he said don't worry it will get paid... we have tons more of paperwork to fill out.. I'm glad she's home, and will be able to see Shannon walk for graduation..
the GP who is a good doctor and has treated Char for years, said it wouldn't surprise him if he were to hear that she died anytime soon... but he also says she might make it 5 years or more as long as she pays attention, follows instructions, and doesn't overdo it..
she hasn't been home 20 minutes and already trying to jump in with both feet... when we see the Dr on Tuesday... I'm gonna demand he give her some tranqs... she reads "light activity as tolerated"
as time to sweep and mop the kitchen, feed the animals, and catch up on the laundry....
please realize the house is not a wreck, Shannon has done an outstanding job of keeping things pretty clean around here.. and we were REALLY NOT expecting her to be released, as she was having chest pain as recently recorded as wednesday evening..
Glad she's home, but I'm still pretty skittish..
Glenn |
|
| |
|
Joined:
March 2005
Posts: 12761
Location: Boise, Idaho | Glenn,
I know this board is a release and a distraction for you, as for most of us. I hope that Char can put up with supervising you rather than doing it herself. My father in law had to take care of his wife for years after she had a series of strokes and he did it with admirable patience and love. It's so hard for those who are helpless to accept it. My mother in law eventually died from complications from a broken hip. She was doing something she shouldn't have been doing, rather than ask him for help, which he would gladly have given.
You have to convince her that you need to take care of her. That's what's best for both of you. Good luck. |
|
| |
|
Joined:
October 2006
Posts: 5575
Location: big island | well said, (typed) mark. |
|
| |
|
Joined:
October 2006
Posts: 5575
Location: big island | For you, Glenn:
http://www.hall4bc04.org/Storm.htm |
|
| |
|
Joined:
March 2005
Posts: 5567
Location: Blue Ridge Mountains | Glen;
Violetta and I want to let you and Char know that you are in our prayers as well as on the prayer lists of my two churches; I am praising God for his blessings in allowing Char to survive this latest tramma and be able to return home! Each day is a gift and is precious! We are keeping your family in our hearts!
Blessings! |
|
| |
|
Joined:
November 2004
Posts: 1374
| since I last checked in with you Char has developed an aneurysm above the cath entry site, they attempted to close the neck on it and thought they had it sealed... was released again on the 22nd and was recovering well and no pain, today started feeling pressure and pain in the aneurysm site and back to the hospital we went... the repair has failed, and in order to repair again they will now have to filter out the blood thinners and in doing so will cause some more possible clotting, and make the heart work harder in it's severely weakened state and more at risk for a-fib, again... waiting for the day staff and Drs and lab people to come in have their coffee and let us know... but basically she's in some severe risk with this, and we still haven't stabilized or progressed once yet..
please keep her in your thoughts and thank you for your support and kind words.
Glenn |
|
| |
|
Joined:
April 2006
Posts: 1017
Location: Budd Lake, NJ | Of course I will; I have walked the road where you are, Glenn--I will uphold you both.
--Karen |
|
| |
|
Joined:
April 2005
Posts: 200
Location: Melbourne Fl. | Brother,I'm here to lean on....see you at Holmes. Al Patty's praying too.......... |
|
| |
|
Joined:
December 2004
Posts: 4394
Location: East Tennessee | Glenn,
I'll keep on praying. |
|
| |
|
Joined:
December 2004
Posts: 2150
Location: Orlando, FL | As always Glenn, you are both in our prayers. |
|
| |
|
Joined:
November 2004
Posts: 1374
| thanks guys and miss Karen, we're in room 524 Al.
finally got the new laptop back from gateway...only took them 6 returns on the old one to figure out it was a lemon and send out a new one..
Char's resting still waiting on doctors and specialists.
Glenn |
|
| |
|
Joined:
May 2003
Posts: 4389
Location: Capital District, NY, USA Minor Outlying Islands | Can you smuggle in a little guitar or a uke to play for her? If I did that for my wife, she'd crack a smile.
Of course it would make my mother-in-law grimace. Ha! All the more reason to play for the mom in law! |
|
| |
|
Joined:
November 2004
Posts: 1374
| Originally posted by an4340:
Can you smuggle in a little guitar or a uke to play for her? If I did that for my wife, she'd crack a smile.
Of course it would make my mother-in-law grimace. Ha! All the more reason to play for the mom in law! I actually have the craftsman elite up here with us.. playing lot's of bright and familiar music for her.... not well... but she's used to that.
Thanks Again All
Glenn |
|
| |
|
Joined:
November 2004
Posts: 1374
| and I found out why it is a USED N768... looks like the bridge was relocated.. there's an extra set of holes in the soundboard filled with resin.. the intonation is right now tho...the bridge covers it up and is unseen from the front, so that must have been it.
Glenn |
|
| |
|
Joined:
November 2004
Posts: 1374
| they're taking Char down for a reduction procedure on the aneurysm now... this is the chemical reduction that should have been done the first time.. or so says this vascular surgeon.
I'll let you know when she's in recovery and back up.
Thanks again all
Glenn |
|
| |
OT: Keep Char in your thoughts and prayers today please
